Difference from the rest of the world: Extremely rare syndrome, affecting only about 1 in 1 billion people, making life difficult for 6-year-old girl

Difference from the rest of the world: Extremely rare syndrome, affecting only about 1 in 1 billion people, making life difficult for 6-year-old girl

Jiangli has endured relentless ridicule due to her appearance. She struggled to make friends with other children who were either frightened or often teased her.

To date, there is no official diagnosis explaining Jiangli’s unusual condition. However, some medical professionals suspect she may have Hypertrichosis Universalis syndrome – a genetic mutation that leads to abnormal hair growth on the face and body. This syndrome is incredibly rare, affecting only approximately 1 in 1 billion people.

Liu Jiangli’s heartbreaking journey took another turn when she was adopted by a compassionate caregiver. She had been abandoned at a nursery school when she was just two years old, as her unique appearance terrified other children.

Now six years old, Jiangli bears a thick coating of black fur on the left side of her face, with additional patches covering a significant portion of her body, including inside her left ear.

She describes her condition as itchy but not painful. Nicknamed the “little monkey,” Jiangli’s father left her at the nursery one day and never returned, shortly after her mother had also left the family home.

Liu Mingying, the grandfather of one of Jiangli’s cousins, stepped in to care for the young girl. However, he worries about his ability to afford her education and fears that she will continue to face bullying due to her unique appearance.

Although Jiangli’s condition remains undiagnosed officially, it is suspected that she may have Hypertrichosis Universalis, commonly referred to as Werewolf Syndrome. Despite the challenges she has faced, Jiangli’s story now includes the love and care of a family member willing to stand by her side.

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